tag:blogger.com,1999:blog-11125127.post115324371422158801..comments2023-05-02T10:52:43.408-04:00Comments on Church of the Big Sky: Always in motion is the futureMerujohttp://www.blogger.com/profile/14123831956012950960noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-11125127.post-1153531907555322642006-07-21T21:31:00.000-04:002006-07-21T21:31:00.000-04:00I'd be very interested in hearing details on what ...I'd be very interested in hearing details on what this condition is, too. (I suffer from severe Inquisitive Nerdliness.) It's bizarre that blood vessels would grow/change/whatever so quickly, right? (I gather this was a sudden event? Just how quickly did it come on?) Sounded at first like a detached retina, but the weedy thing is ... interesting!<BR/><BR/>A friend of mine is entering an advanced stage of macular degeneration (blind spot in center of vision increases until you're eventually completely blind), and he's aquired various gadgets that help significantly. Ask your doc if there are any gizmos that can help deal with, say, computer screens and nausea (even if it's as simple as an eyepatch, for example). Also, there are bound to be others who suffer this. Look (and ask) around for support groups, listservs, etc. If this thing has a name, then you're certainly not alone, and you can get a jump start on dealing with it by talking to others who've been there, done that.<BR/><BR/>Dang, you don't ever do boring, do you?<BR/><BR/>Regarding shitheads who say stupid mean things to you, there's a quote from the first wife (died of TB) of Richard Feynman (famous physicist) that may help. He was all tied up in knots during his Princeton days about all the big shots around him, and one day his wife wrote to him from her hospital bed, "What do YOU care what other people think?" Words to live by.<BR/><BR/>Oh -- and the glass is neither half full nor half empty. It's just not being used optimally!murisonhttps://www.blogger.com/profile/01839980468078919338noreply@blogger.comtag:blogger.com,1999:blog-11125127.post-1153356103999965572006-07-19T20:41:00.000-04:002006-07-19T20:41:00.000-04:00*hug*I write about my own "disability" a lot on my...*hug*<BR/><BR/>I write about my own "disability" a lot on my blog, and I worry that people get tired of hearing about it. (I use quotes because my problem doesn't keep me from functioning normally. I just can't have children, which I've wanted since I myself was a child.)<BR/><BR/>But I think that everything we write is necessary--otherwise, why would we write it? (Whether or not we write it <EM>well</EM> is another matter entirely...you, as always, write with intelligence, integrity, strength, honesty, and style.)<BR/><BR/>Best wishes and good vibes to you and your doctor(s).Heather Meadowshttps://www.blogger.com/profile/04962932701620185508noreply@blogger.comtag:blogger.com,1999:blog-11125127.post-1153333680251283272006-07-19T14:28:00.000-04:002006-07-19T14:28:00.000-04:00Thanks, folks. Claire, I have the technical term w...Thanks, folks. <BR/><BR/>Claire, I have the technical term written down at home - I'll post it for you here. In layman's terms, it's an abnormal growth of weedlike blood vessels behind the retina. They created a blister of fluid immediately adjacent to the center of vision in my left eye. (Bleech.) We all have challenges that can stop forward momentum. It's strange to feel like you're standing in mud when the world is swirling around you. I hope you are able to pick out a future of your own design. (That last line stolen from Thomas Dolby, actually. But it's a very good line, indeed.)<BR/><BR/>Betsi, you are always the glass half full girl, aren't you? I need to adjust to that thinking. :-)<BR/><BR/>Cube and Reya - thanks for the kind words and good thoughts. Cube, you made me cry last night when I read your comment. I appreciate the support. And Reya, thank you for the healing energy. I appreciate it so very much.Merujohttps://www.blogger.com/profile/14123831956012950960noreply@blogger.comtag:blogger.com,1999:blog-11125127.post-1153321005334485782006-07-19T10:56:00.000-04:002006-07-19T10:56:00.000-04:00I think of your recent posts as healing-related, r...I think of your recent posts as healing-related, rather than "ailment related" as you called them. You're writing about your healing process which is pretty damn dynamic (it always is). I'm really loving your posts.<BR/><BR/>As to the future you foreSEE, well you have double vision now which would mean to me that you have two different futures you're seeing simultaneously. Sounds like at a very deep level you are choosing which fork in the road to follow.<BR/><BR/>Much healing energy headed in your direction!Reya Mellickerhttps://www.blogger.com/profile/13076092659507965666noreply@blogger.comtag:blogger.com,1999:blog-11125127.post-1153275718174911202006-07-18T22:21:00.000-04:002006-07-18T22:21:00.000-04:00I've held off writing to you about this because I ...I've held off writing to you about this because I keep getting this image of a moth or some winged creature in a jar, flying around beating itself against walls, trying to get free.<BR/><BR/>I am sure you are full of...what word can I choose....horror? right now. You are physically ill, you've suffered a disability, you are trying to stay on course and level headed and acceptant and then those horrible thoughts fill your head again, "Will it always be this bad, will it get worse, what is my future?" and trying hard, hard, hard not to flat out panic.<BR/><BR/>There are absolutely no words I can offer up that will stop these things you feel are happening. I can only hope the best for you and pray that your healing progresses so that you are back to your optimistic self. You're already writing about your future away from this, and that is good. You do have friends in the blogging community who will be here for you in our best blogging capacity. :)Washington Cubehttps://www.blogger.com/profile/02892459114050731786noreply@blogger.comtag:blogger.com,1999:blog-11125127.post-1153251297576031242006-07-18T15:34:00.000-04:002006-07-18T15:34:00.000-04:00"“We inherit the future we foresee.”Indeed. Where ..."“We inherit the future we foresee.”<BR/><BR/>Indeed. Where do I want to go?"<BR/><BR/>My reasons are different, but I struggle with that too. Perhaps it is my lack of foresight (in a goal/dream/pursuit type of way) that keeps me stationary.<BR/><BR/>Good luck with the eye. Does the condition have a name?Clairehttps://www.blogger.com/profile/06168243108016358137noreply@blogger.com